Tuesday, January 26, 2010

New Path

Hello to everyone! I am doing well right now just playing with my dolls and roughing around with my brothers when they get home from school. I do not know if they let me win or if I am just that tough.
As of right now I am not going to have surgery because the doctors feel that they can get a more accurate assessment of my tumor with a CT guided Biopsy. It has my momma and daddy a little scared because I will still be under anesthesia for a hour. I hate not being able to control everything that is going on but maybe I will wake up and not be too angry.
I do not know yet when I am doing this but just know soon. Momma told me that I am going to have more pictures and that I get to ride through the 'doughnut' again which I like to do. The techs there always give me a handful of stickers when I get done. I LOVE STICKERS!
Please pray for a friend of mine from Children's Hospital. We met at the Hope Lodge while I was getting radiation. Adrianna was very nice to me and she needs our prayers as she gets closer to becoming an angel.
hugs and kisses to everyone,
Amelya

Wednesday, January 20, 2010

Meet the New Surgeon

Tomorrow we will meet my new surgeon. He is going to talk to momma and daddy about my biopsy surgery. The plan is to go in and take as many samples as they can of the tumor left and then have a pathologist study them so we will know if there are any live cancer cells there and if so where the concentration is so as to maybe make a better rescission surgery plan. The doctors really want to get this tumor out of me but do not want to do anything that will cause me long term damage. So my options are no more chemotherapy, if the tumor is dead; a different chemotherapy if the tumor is alive but not operable; surgical rescission to remove the tumor.
I am doing well otherwise. I am eating great and so mommy has not hooked me up to my feeds in a couple of weeks. she keeps telling me that if I would take my medicine by myself then I could get my tube removed but I just do not want to take my medicine. As always, it is my way or no way!
Hugs and Kisses,
Amelya

Friday, January 8, 2010

Update

Well I got through my Chemotherapy with only some cramping this time-- no severe diarrhea repeat!!! Thanks to all of you for your prayers and support.
Went to Clinic today to get my CT scans to check on any progress made by the radiation I had in August-September of last year and also to see of the last round of chemotherapy did any damage; to our dismay there was no measurable change. The doctor wants to go ahead and do the multiple biopsy surgery to get a pathologically view of the tumor left. We will have a surgery date soon I am sure because she wants to get on with my treatment and get me Cancer Free.
As soon as we get the date I will let everyone know.
Hugs and kisses,
Amelya