Well we are home again, yeah!! In the past couple of days I have been through many and tests and procedures to make me feel better. On Monday I recieved a hemogloban transfusion because my counts were down. In order for me to get the transfusion I have to get fluids and a mix of Benedryl and Tylenol. This combo makes me really cranky and I was very unhappy about all the people fussing over me in order to prepare me for the transfusion. The transfusion takes three hours to complete and I fussed for the first two hours until I was so exhausted that I fell asleep.
On Tuesday my platelet count was low and so I needed to get a platelet transfusion. My mummie could not understand why my counts dropped the way they did but the doctors told her that this was just how it happens. The Chemotherapy attacks my fastest growing cells going from the fastest to the next and so on. Once its brings one down it goes to the next so that is why my counts dropped like they did. My platelet transfer went much smoother and I was asleep only 30 minutes into it. Later on I got my second dose of Chemo. I got an ultrasound to check the function of my kidneys and my bladder. I really hate being held down but after I let everybody know that, I calm down and watch what is going on and even try to help.
On Wednesday I had an upset stomach and could not keep my breakfast down so the doctors gave me some medicine that calmed my stomach down and made me sleepy. The big thing that happened to me today is that I began to notice my hair falling out. I hate how I keep getting it into my mouth but mummie helps me get it out and even brushes my hair to help catch it before it can fall on my face. At rounds my doctor, Dr. Gardner, told me that going off the measurements from my first ultrasound at Children's Hospital and the one I had this morning there was a 30% difference in size. Dr. Gardner said that they would know for sure by tomorrow. The doctors are concerned about my thumb, (I smashed it in a door at home two months ago), that has still not began to heal even though I have been on antibiotics for two weeks so she ordered a x-ray and began a much stronger antibiotic to try to help my thumb heal.
On Thursday, my counts were still up so I did not need anymore transfusions for now. The doctors told me that my bone was not infected so I could go home for the weekend!! Also Dr. Gardner came by and told that the exact number of shrinkage of my tumor was 33% and she was so happy and suprised. Well I now have lost another pound so now I have lost 4 pounds since this has all started a month ago and Dr. Gardner wants me to try to eat as much as I can while I am at home so I do not lose anymore weight. The problem is that the Chemo has changed my taste buds and now I do not like anything that I used to so I do not want to eat. Mummie and dada have tried to give me all kinds of different kinds of food but the only thing I have eaten was a Strawberry All Fruit bar. I put it in a cup because it is soo big and then I eat it as it melts. This makes the nurses happy because at least I am eating something. I got to go home and I was so happy to see Ya-Ya (Garrett) and Bubee (Nic) and I gave them big hugs and kisses.
I have discovered that I like cheese still so I ate cheese and juice for dinner. My mummie was so happy to see me eat that she let me have a treat of Robin Eggs after I finished.
Hi Amelya! I'm go happy to hear about the tumor shrinking by 1/3 it's size, and I am glad you're home.
ReplyDeleteLove Aunt Linda